March 19, 2026

477. Podcasthon: When Podcasting Becomes Bigger Than Content

In this special Podcasthon episode, we join a global initiative through Podcasthon.org, using podcasting to support charities and nonprofits through meaningful storytelling, and I’m joined by the PMC cast and crew as we each share causes that matter deeply to us. I’m also joined by my best friend Jonah Berger, who shares his experience living with CMT (Charcot-Marie-Tooth disease) and the work being done toward a cure.

From honoring loved ones to sharing personal health journeys, we highlight organizations like the Glioblastoma Foundation, Islamic Relief, CMTA, Stand Up To Cancer, and MSAA. Along the way, we also weave in podcasting insights, reminding ourselves that our shows are more than content. They’re a way to create connection, raise awareness, and make a real impact.

Episode Highlights:

[00:05] Opening and introduction to Podcasthon and today’s global initiative

[02:21] What Podcasthon is and how podcasters are participating worldwide

[04:01] How the PMC community is supporting charities through a shared page

[05:00] Wheel of Jargon: Understanding IAB and why it matters

[11:00] Ralph shares a personal story and supports the Glioblastoma Foundation

[20:00] A reminder to honor loved ones and take meaningful action

[21:03] Junaid highlights Islamic Relief and advocacy organizations

[26:09] Wheel of Jargon: What ID3 tags are and why they matter

[27:42] Marc introduces CMT and welcomes guest Jonah Berger

[30:00] Living with CMT and how it shapes daily life

[34:10] Progress toward a cure and the power of collaborative research

[41:48] Camp Footprint and building community for kids with CMT

[42:46] D.R. shares her husband’s cancer journey and Stand Up To Cancer

[48:45] Tim shares his MS journey and support for MSAA

[50:00] The impact of sharing stories and supporting causes through podcasting

Links & Resources:

Learn more about Podcastthon:⁠ ⁠https://podcasthon.org⁠⁠

Here are the charities the team is supporting for Podcasthon: ⁠https://www.podcastingmorningchat.com/charity/

Jonah Berger’s book: He Walks Like a Cowboy ⁠https://www.amazon.com/He-Walks-Like-Cowboy-Disability/dp/0595471684/⁠

Jonah's Presentation at his local middle school (courtesy of FOX 47):

⁠https://www.facebook.com/reel/1326849999266221⁠

Junaid's Book: Podcast Relationship Management

⁠http://PRMbook.com⁠

Junaid's Podcast 'Operating System'

⁠https://www.podglue.com/⁠

Multiple Sclerosis Association of America (MSAA):

⁠https://mymsaa.org/

The Podcasting Morning Chat:

⁠www.podcastingmorningchat.com⁠

Meet the PMC Cast and Crew:

⁠https://podcastingmorningchat.com/people⁠

Join The Empowered Podcasting Facebook Group:

⁠www.facebook.com/groups/empoweredpodcasting⁠⁠

Book A Free Call With Me:

⁠https://calendly.com/ironickmedia/freestrategycall⁠

Application To Submit Your Show For Evaluation:

⁠https://podcastingmorningchat.com/eval⁠

Join us Mondays at 7 AM ET for the Obsession Worthy Podcasts:⁠http://podcastingmorningchat.com/owp/⁠

Remember to rate, follow, share, and review our podcast. Your support helps us grow and bring valuable content to the podcasting community.

Join us LIVE every weekday morning at 7 am ET (US) on ⁠Clubhouse⁠: ⁠⁠⁠⁠ ⁠⁠https://podcastingmorningchat.com/clubhouse⁠

EPC3 Speaker Application: ⁠https://empoweredpodcasting.com/speakers⁠

Podcasters Happy Hour (March 26, 5:30pm EDT, North Bethesda Maryland):

⁠https://podnews.net/event/podcaster-visibility-meetup-in-the-dmv⁠

Live on YouTube: ⁠⁠⁠⁠http://podcastingmorningchat.com/joinus⁠

Powered by⁠⁠ ⁠iRonickMedia.com⁠⁠⁠ and ⁠ContentCreatorsAccountant.com⁠

Please note that some links may be affiliate links, which support the hosts of the PMC. Thank you!

--- Send in your mailbag question at:⁠⁠ https://www.podcastingmorningchat.contact/⁠⁠ or ⁠marc@ironickmedia.com⁠

Want to be a guest on The Podcasting Morning Chat? Send me a message on PodMatch, here:

⁠⁠https://www.podmatch.com/hostdetailpreview/1729879899384520035bad21b⁠⁠

1
00:00:05,120 --> 00:00:07,240
Good morning, podcasting.
Morning Chat.

2
00:00:07,480 --> 00:00:14,240
Today is Thursday, March 19th,
2026, and today it's podcast on

3
00:00:14,240 --> 00:00:16,680
a worldwide initiative
celebrating charities and

4
00:00:16,680 --> 00:00:20,200
nonprofits around the world
through podcasting as each of us

5
00:00:20,200 --> 00:00:23,840
shares who are spotlighting and
the personal story behind it.

6
00:00:25,800 --> 00:00:28,520
So if you're listening live on
Clubhouse, hit the share button,

7
00:00:28,520 --> 00:00:30,560
bottom left hand side of the
screen and share it.

8
00:00:30,560 --> 00:00:33,360
However, Clubhouse lets you.
And if you're catching us via

9
00:00:33,360 --> 00:00:36,640
podcast, YouTube, LinkedIn,
etcetera, please share this with

10
00:00:36,640 --> 00:00:40,720
a fellow podcaster.
And now give us about 30 seconds

11
00:00:40,720 --> 00:00:44,120
and we'll get things rolling.
Thanks for being here.

12
00:00:51,880 --> 00:00:55,760
The Podcasting Morning Chat is
powered by Ironic Media, helping

13
00:00:55,760 --> 00:01:00,640
podcasters launch, Polish and
grow great shows, and by Content

14
00:01:00,640 --> 00:01:03,560
Creators Accountant, helping
creators build real business

15
00:01:03,560 --> 00:01:22,320
behind their content.
Good morning again podcasting

16
00:01:22,320 --> 00:01:24,160
morning Chat.
Thank you so much for being

17
00:01:24,160 --> 00:01:26,720
here.
I am your host Mark Ronik and

18
00:01:27,120 --> 00:01:31,200
currently on stage with me we
have my Co hosts Dr. Faye,

19
00:01:31,280 --> 00:01:35,200
Ralph, Estep.
We also have Janaeed and Tide

20
00:01:35,200 --> 00:01:40,200
AKA Nikki joining us from the
audience, our regulars here on

21
00:01:40,200 --> 00:01:42,120
stage.
Awesome to have you guys there

22
00:01:42,120 --> 00:01:44,040
and I know it's usually a much
longer list.

23
00:01:44,400 --> 00:01:47,040
Quite frankly, I don't know
where the whole team is today,

24
00:01:47,040 --> 00:01:50,240
but I know that BC Babbles will
be joining us a little bit

25
00:01:50,240 --> 00:01:52,120
later.
He gave me the heads up this

26
00:01:52,120 --> 00:01:55,360
morning that he was going to be
a little late and we'll find out

27
00:01:55,360 --> 00:01:58,800
where the rest of the crew is
momentarily.

28
00:01:58,800 --> 00:02:03,800
But I am really excited to get
into today's topic and I'll

29
00:02:03,800 --> 00:02:06,240
first share about that and then
we're going to talk a little

30
00:02:06,240 --> 00:02:09,560
podcasting for a moment.
But first, like I said, today

31
00:02:09,560 --> 00:02:14,160
we're joining this global
podcast movement that encourages

32
00:02:14,160 --> 00:02:18,600
hosts to use their platform to
shine a light on a 'cause that

33
00:02:18,600 --> 00:02:21,800
they care about.
Podcast on dot org.

34
00:02:21,800 --> 00:02:25,840
By the way, spelled with one T
is about convincing as many

35
00:02:25,840 --> 00:02:29,800
hosts as possible to dedicate
one episode of their show to a

36
00:02:29,800 --> 00:02:33,320
charity of their choice and to
release these episodes

37
00:02:33,320 --> 00:02:38,480
simultaneously in a coordinated
effort this very week, creating

38
00:02:38,480 --> 00:02:42,440
a massive and international wave
of inspiring content.

39
00:02:42,800 --> 00:02:47,160
The objective to raise awareness
for a huge number of charities

40
00:02:47,160 --> 00:02:49,560
worldwide.
So you can learn more about

41
00:02:49,560 --> 00:02:53,040
Podcast Thon.
Check them out at Podcast

42
00:02:53,080 --> 00:02:57,480
thon.org.
Like I said, one T in Podcast

43
00:02:57,480 --> 00:03:01,720
Thon, even though it should be
too, but it's one T.

44
00:03:02,080 --> 00:03:05,360
So today what we'll do is I'm
going to go around the room and

45
00:03:05,360 --> 00:03:08,200
if you are listening in the
audience, John, Mike, Dave,

46
00:03:08,200 --> 00:03:13,000
Austin, Tim, come up and share a
nonprofit, a charity, an

47
00:03:13,000 --> 00:03:17,400
organization that you support or
would like others to support.

48
00:03:17,760 --> 00:03:20,840
I've got to believe that even if
there isn't one that's maybe a

49
00:03:20,840 --> 00:03:24,920
go to for yours, you could
probably think of 1 and come up

50
00:03:24,920 --> 00:03:27,520
and share it and share why you
chose it.

51
00:03:28,040 --> 00:03:30,200
But let's be a part of this
awesome initiative.

52
00:03:30,200 --> 00:03:33,960
I think there's somewhere around
3000 different podcasts that are

53
00:03:33,960 --> 00:03:38,760
actually participating in this.
So I really want us to do our

54
00:03:38,760 --> 00:03:41,920
part as well and really shine.
And I think that's the beauty of

55
00:03:41,920 --> 00:03:45,360
this show is that we have so
many voices that we can do

56
00:03:45,360 --> 00:03:47,680
something special like this
together.

57
00:03:48,040 --> 00:03:49,480
Yes, Ralph, you had something.
Go ahead.

58
00:03:49,600 --> 00:03:50,920
Yeah.
I just want to let everybody

59
00:03:50,920 --> 00:03:53,160
know that if you want to support
one of the charities we're going

60
00:03:53,160 --> 00:03:55,600
to be talking about today, we
actually have built a website,

61
00:03:55,600 --> 00:03:58,600
part of our website, and you can
get that at Podcasting Morning

62
00:03:58,600 --> 00:04:03,120
chat dot com slash charity.
And if you want to send me over

63
00:04:03,120 --> 00:04:05,760
a link to your charity, we'll
make sure we put it up on the

64
00:04:05,760 --> 00:04:07,840
website.
But again, that's Podcasting.

65
00:04:07,840 --> 00:04:11,800
Morning chat.com/charity.
Thank you, Ralph for putting

66
00:04:11,800 --> 00:04:16,040
that together and thank you,
Tim, for joining us on stage as

67
00:04:16,040 --> 00:04:17,440
well.
Love that.

68
00:04:17,760 --> 00:04:27,080
OK, so before we dig into that.
Look, we're a show about

69
00:04:27,080 --> 00:04:29,480
podcasting.
It feels weird to me if we don't

70
00:04:29,480 --> 00:04:34,120
talk at all about podcasting in
any way, shape or form, even

71
00:04:34,120 --> 00:04:36,360
though I know we're doing
something special today.

72
00:04:36,600 --> 00:04:38,480
And side note, by the way, stick
around.

73
00:04:38,480 --> 00:04:43,520
Fingers crossed. 7:30-ish AM.
My best friend Jonah Berger is

74
00:04:43,520 --> 00:04:47,280
joining us.
Jonah has a disease called CMT

75
00:04:47,400 --> 00:04:53,360
Shark O Marie Tooth, and I am
supporting the CMTA who raises

76
00:04:53,360 --> 00:05:00,120
money and awareness to cure CMT.
But first you heard it, that

77
00:05:00,120 --> 00:05:02,640
wheel of jargon.
We also have had a wheel of

78
00:05:02,640 --> 00:05:05,560
topics here in the past.
The wheel of jargon.

79
00:05:05,760 --> 00:05:07,680
I'm going to ask, I'm going to
put someone on the spot.

80
00:05:07,680 --> 00:05:13,680
Dr. Would you mind sharing what
the wheel of jargon is while I

81
00:05:13,680 --> 00:05:16,080
put it up on screen for our
visual audience?

82
00:05:16,560 --> 00:05:20,440
OK, sure.
So we realized that our audience

83
00:05:20,760 --> 00:05:25,160
is made-up not only of seasoned
podcasters, but also new

84
00:05:25,160 --> 00:05:27,680
podcasters just coming on board,
basically.

85
00:05:27,880 --> 00:05:33,640
And there are a lot of just like
any profession, they have their

86
00:05:33,640 --> 00:05:38,520
own jargon, their own words that
mean something just within that

87
00:05:38,680 --> 00:05:42,560
group of people.
And podcasting is no different.

88
00:05:42,640 --> 00:05:46,760
We have our own jargon, and it
could be very intimidating for

89
00:05:46,760 --> 00:05:52,160
new people coming on board.
And they don't know what an RSS

90
00:05:52,160 --> 00:05:52,960
feed is.
They don't.

91
00:05:53,040 --> 00:05:55,640
They know what a host is, they
don't know what any of these

92
00:05:55,640 --> 00:05:59,520
words mean.
And sometimes it really is very

93
00:05:59,520 --> 00:06:03,200
deflating.
So we have this wheel of jargon

94
00:06:03,520 --> 00:06:07,400
to help you out a little bit.
That was a perfect on the spot

95
00:06:07,640 --> 00:06:10,800
explanation.
Thank you DRI, appreciate you

96
00:06:11,120 --> 00:06:13,640
filling that time for me and
doing it with purpose.

97
00:06:13,640 --> 00:06:16,200
I love it.
All right, so I am going to spin

98
00:06:16,240 --> 00:06:19,440
the wheel and if for some reason
you don't hear it live, don't

99
00:06:19,440 --> 00:06:22,320
worry.
We're capturing the audio here

100
00:06:22,600 --> 00:06:24,880
on my Rd. caster and on
Riverside.

101
00:06:24,880 --> 00:06:29,880
So, spinning this wheel of
jargon, we'll see who wants to

102
00:06:29,880 --> 00:06:33,160
answer the question that it
lands on or the thing that it

103
00:06:33,160 --> 00:06:34,880
lands on.
Oh, I might have to go to you,

104
00:06:34,880 --> 00:06:38,800
Dr. 'cause I have in parentheses
here.

105
00:06:38,800 --> 00:06:41,720
If you're looking at us on
screen, it says Dr. Suggested

106
00:06:41,720 --> 00:06:44,480
this one.
Oh boy, AIB.

107
00:06:45,080 --> 00:06:47,560
I hope it's one that I know.
AIB, Do you know it?

108
00:06:47,640 --> 00:06:51,480
AIB.
Oh, AIB it is.

109
00:06:52,120 --> 00:06:56,360
I'm not good at it, but I know
that it's like they're number

110
00:06:56,360 --> 00:06:58,360
one.
It costs an enormous amount of

111
00:06:58,360 --> 00:07:03,880
money for podcast hosts, hosting
platforms, distribution

112
00:07:03,880 --> 00:07:12,480
platforms to belong to the AIB.
And it is a set of no, you go

113
00:07:12,480 --> 00:07:17,080
ahead.
Because the wheel of jargon

114
00:07:17,080 --> 00:07:19,760
stumped the person who actually
put the thing on it.

115
00:07:20,560 --> 00:07:22,640
Well, maybe I put it on there
because I don't know what the

116
00:07:22,640 --> 00:07:23,320
hell.
It is Mark.

117
00:07:23,600 --> 00:07:25,760
Mark.
I think it's actually the I

118
00:07:25,800 --> 00:07:27,120
it's.
IAB it's.

119
00:07:27,200 --> 00:07:29,200
IAB.
It's the IAB.

120
00:07:29,760 --> 00:07:32,440
OK, well, there you go.
Maybe there was a typo on the

121
00:07:32,440 --> 00:07:34,240
wheel, I don't know.
So here's.

122
00:07:34,240 --> 00:07:35,520
What I That's what screwed me
up.

123
00:07:35,520 --> 00:07:36,920
Yeah.
Do you know what it is or would

124
00:07:36,920 --> 00:07:39,720
you like me to share?
I would love for you to share.

125
00:07:41,440 --> 00:07:46,080
So when people in podcasting
talk about stats or downloads or

126
00:07:46,080 --> 00:07:50,640
ad measurement, they almost
always mean IAB, short for

127
00:07:50,640 --> 00:07:56,760
Interactive Advertising Bureau,
IAB sets widely used podcast

128
00:07:56,760 --> 00:07:59,560
measurements standards,
including how downloads are

129
00:07:59,560 --> 00:08:05,080
counted and filtered.
If you saw AIAB, well, IABAIB,

130
00:08:05,080 --> 00:08:07,800
it's IAB.
So the practical answer is in

131
00:08:07,800 --> 00:08:09,760
podcasting.
Yeah, I think I explained it.

132
00:08:09,760 --> 00:08:13,880
It's a measurement for.
It's a standard for measurements

133
00:08:14,440 --> 00:08:19,520
measuring different analytics.
Right now I will tell you that

134
00:08:20,200 --> 00:08:24,360
there are some distribution
platforms, also known as hosting

135
00:08:24,400 --> 00:08:32,480
platforms that will not join the
IAB just because it is so cost

136
00:08:32,520 --> 00:08:35,480
prohibited.
And where will you find it on

137
00:08:35,480 --> 00:08:39,520
Lipson?
Lipson has a little IAB link.

138
00:08:39,520 --> 00:08:42,840
If you go up into, I think it's
the top right hand corner that

139
00:08:42,840 --> 00:08:45,240
you can click on it and find out
about it.

140
00:08:45,400 --> 00:08:48,840
But there's some, like I said,
there are some distributing

141
00:08:48,960 --> 00:08:55,160
platforms that say we follow IAB
protocols, but we don't belong

142
00:08:55,160 --> 00:08:56,080
to them.
All right.

143
00:08:56,080 --> 00:08:58,120
Thank you.
Dr. Ralph, did you want to ask

144
00:08:58,120 --> 00:08:59,840
or add something?
Yeah, I just want to add one

145
00:08:59,840 --> 00:09:02,360
thing and we have to understand
what this is, what the real

146
00:09:02,360 --> 00:09:05,080
purpose of this is.
And the real purpose is as the

147
00:09:05,080 --> 00:09:09,160
money guy on the show, this is
so advertisers have a benchmark

148
00:09:09,160 --> 00:09:12,920
to know that the stats you're
giving them about your content

149
00:09:13,320 --> 00:09:15,400
are certified.
That's the whole point of this

150
00:09:15,480 --> 00:09:18,200
IAB.
So because there was a sort of

151
00:09:18,280 --> 00:09:21,600
AI got my cowboy hat on today
and it was kind of a Wild West

152
00:09:21,600 --> 00:09:25,440
mentality to the downloads thing
before this IAB came along.

153
00:09:25,440 --> 00:09:30,480
But it was really a way to have
a standard way to measure the

154
00:09:30,480 --> 00:09:32,240
downloads and all that sort of
thing.

155
00:09:32,240 --> 00:09:34,320
And Dr. is absolutely right.
There are certain hosting

156
00:09:34,320 --> 00:09:37,640
providers that are agreeing or
they're, I think the actual term

157
00:09:37,640 --> 00:09:40,480
is certified.
There's actually a certification

158
00:09:40,480 --> 00:09:42,560
process.
But again, as the money guy on

159
00:09:42,560 --> 00:09:45,040
the show, I want to go to the
the why of this.

160
00:09:45,360 --> 00:09:48,920
The why of this is to have some
non Wild West standards to

161
00:09:48,920 --> 00:09:51,400
measurement.
That is a great point.

162
00:09:51,400 --> 00:09:53,920
Thank you Ralph.
Does anyone else want to comment

163
00:09:53,920 --> 00:09:56,880
or add something?
I appreciate Janae putting in

164
00:09:56,880 --> 00:10:00,240
the chatiab.com.
That's where you can learn more

165
00:10:00,240 --> 00:10:05,520
about it.
OK, so it is like I said,

166
00:10:05,520 --> 00:10:08,360
podcast thon.
I don't need to go into a full

167
00:10:08,360 --> 00:10:10,840
explanation again.
And if you want more

168
00:10:10,840 --> 00:10:16,840
information, again, that URL is
podcast thon.org with one T in

169
00:10:16,840 --> 00:10:19,640
podcast thon.
So here's how I want to do it.

170
00:10:19,640 --> 00:10:23,160
I'm going to go down the line
and again, I want to encourage

171
00:10:23,160 --> 00:10:26,880
you in the live audience to
please come up, there's Alex

172
00:10:26,880 --> 00:10:31,040
Baelish, just in time.
Please come up and be prepared

173
00:10:31,040 --> 00:10:33,360
to talk about your charity.
I'll ask you a bunch of

174
00:10:33,360 --> 00:10:36,080
questions, so don't feel like
you have to do a whole monologue

175
00:10:36,080 --> 00:10:38,360
here, right?
But I'll ask you some questions

176
00:10:38,360 --> 00:10:40,720
about what the charity is that
you're highlighting today.

177
00:10:40,720 --> 00:10:43,880
I'll ask you to tell us a little
bit about it and what made you

178
00:10:43,880 --> 00:10:45,320
choose it.
And we might have some

179
00:10:45,320 --> 00:10:47,840
follow-ups along the way.
We'll see how many of these we

180
00:10:47,840 --> 00:10:52,880
can get through.
And 1st, let's go to Ralph.

181
00:10:53,240 --> 00:10:55,240
Ralph, good morning again to
you.

182
00:10:55,440 --> 00:10:58,960
What charity or nonprofit are
you highlighting today?

183
00:10:58,960 --> 00:11:00,920
All.
Right, so today I want to talk

184
00:11:00,920 --> 00:11:03,560
about an anniversary.
And today is actually the

185
00:11:03,560 --> 00:11:05,720
three-year anniversary of my
mother passing away.

186
00:11:06,360 --> 00:11:08,640
And yeah, it's been a rough
morning.

187
00:11:08,640 --> 00:11:12,200
You don't realize until you're
an adult how much mom means to

188
00:11:12,200 --> 00:11:14,240
you.
And the reason I picked the

189
00:11:14,240 --> 00:11:17,720
charity I picked is the
Glioblastoma Foundation.

190
00:11:18,240 --> 00:11:19,760
And I want to give you a little
background.

191
00:11:19,760 --> 00:11:24,920
So my mother was 76 and my
sister and I just, the two of us

192
00:11:24,920 --> 00:11:26,720
noticed that mom was slipping a
little bit.

193
00:11:27,240 --> 00:11:29,800
And like, I remember 1 morning,
she was on her way to church and

194
00:11:29,800 --> 00:11:31,960
she forgot how to get there.
And it's about a mile from her

195
00:11:31,960 --> 00:11:34,120
house.
And my sister and I sort of

196
00:11:34,120 --> 00:11:36,800
thought, well, you know, this
is, you know, this is getting

197
00:11:36,800 --> 00:11:38,960
older.
She's starting to get forgetful.

198
00:11:39,280 --> 00:11:41,360
And I kind of, we have kind of
said, OK, well, you know, we'll

199
00:11:41,360 --> 00:11:43,520
get her some testing.
We'll see how things go.

200
00:11:43,520 --> 00:11:45,040
And it kind of got put on the
wayside.

201
00:11:45,040 --> 00:11:48,720
Then for my mother's birthday,
my sister took her on a cruise.

202
00:11:49,080 --> 00:11:51,640
And right before she left for
the cruise, she came to our

203
00:11:51,640 --> 00:11:54,240
house for Thanksgiving.
And I could look in my mom's

204
00:11:54,240 --> 00:11:56,080
eyes and see something wasn't
right.

205
00:11:56,440 --> 00:11:58,920
You could just tell like she was
looking off in a direction.

206
00:11:58,920 --> 00:12:01,640
It just didn't make any sense.
But I, again, I chalked it up to

207
00:12:01,640 --> 00:12:03,800
maybe she's tired, maybe
something's going on.

208
00:12:04,320 --> 00:12:07,160
And so she went on the cruise.
When she got back, she was

209
00:12:07,160 --> 00:12:09,960
completely different.
And my sister said, you know,

210
00:12:09,960 --> 00:12:11,080
she wouldn't get up in the
morning.

211
00:12:11,080 --> 00:12:13,160
My, my mom has always been an
early riser.

212
00:12:13,160 --> 00:12:15,400
She raised my sister and I as a
single mom.

213
00:12:15,600 --> 00:12:17,640
My sister's name is Renee.
I said, Renee, we got to figure

214
00:12:17,640 --> 00:12:20,440
out what's going on here.
So she took her to the ER right

215
00:12:20,440 --> 00:12:21,720
away.
And the ER says, well, I think

216
00:12:21,720 --> 00:12:23,880
she has COVID.
This was all during the, you

217
00:12:23,880 --> 00:12:25,840
know, the, the, the back end of
COVID things.

218
00:12:25,840 --> 00:12:28,080
And I said, OK, I end up
spending a night with her in the

219
00:12:28,080 --> 00:12:30,840
ER And, and the doctors made
sense what they were saying.

220
00:12:30,840 --> 00:12:32,680
You know, your mom's a little
dehydrated.

221
00:12:32,920 --> 00:12:35,280
She's get, you know, she's
older, she's getting forgetful.

222
00:12:35,920 --> 00:12:38,120
And I said, OK, I'll, I'll
that's fine.

223
00:12:38,120 --> 00:12:41,000
That sounds reasonable.
So we took her home and, and

224
00:12:41,000 --> 00:12:42,880
again, like my mom wouldn't get
out of bed.

225
00:12:42,880 --> 00:12:45,360
She wouldn't, she wanted to do
the normal things that she did.

226
00:12:45,880 --> 00:12:48,760
And so I guess it was about a
week later from that Mark, my

227
00:12:48,760 --> 00:12:51,920
sister said again, she took her
to the ER and and I'm going to

228
00:12:51,920 --> 00:12:53,800
apologize ahead of time.
I might get a little emotional,

229
00:12:53,800 --> 00:12:56,920
but this is just, this is Ralph.
I have a feeling this is going

230
00:12:56,920 --> 00:13:00,880
to be common for many of us.
And so I didn't go with her that

231
00:13:00,880 --> 00:13:04,280
night to the ER.
And finally an ER doctor said,

232
00:13:04,280 --> 00:13:08,000
you know, I think we should run
a CAT scan or some kind of scan

233
00:13:08,000 --> 00:13:09,920
here to, to really understand
what's going on.

234
00:13:09,920 --> 00:13:12,280
And I'll never forget the phone
call.

235
00:13:12,280 --> 00:13:15,040
My sister called me and she
said, Ralph, she says mom has

236
00:13:15,040 --> 00:13:19,520
brain tumor.
And it was like 11 O clock at

237
00:13:19,520 --> 00:13:21,920
night and I was not in the right
frame of mind.

238
00:13:21,920 --> 00:13:24,000
And I just said, how is that
possible?

239
00:13:24,440 --> 00:13:27,360
And she says, well, I'm going to
send you a a picture of what

240
00:13:27,360 --> 00:13:29,520
this looks like.
And, and Mark and the rest of

241
00:13:29,520 --> 00:13:32,520
the crew, man, it looked like a
golf ball.

242
00:13:33,400 --> 00:13:35,640
And my mother in the front of my
mother's brain.

243
00:13:36,520 --> 00:13:41,120
And the only thing I could think
of is, OK, how do we fix this?

244
00:13:41,880 --> 00:13:44,760
Yeah.
And my sister said, well, you

245
00:13:44,760 --> 00:13:47,080
know, she's going to have to
meet with a neurologist and all

246
00:13:47,080 --> 00:13:49,760
this kind of thing.
And it's a blur, Mark.

247
00:13:49,760 --> 00:13:52,640
But I remember going in with my
mom.

248
00:13:52,960 --> 00:13:54,960
They kept her in the hospital
because they were like, this is

249
00:13:54,960 --> 00:13:57,560
a problem.
And it was a day or two.

250
00:13:57,560 --> 00:14:00,920
I think it was the next day, she
had some more testing and the

251
00:14:00,920 --> 00:14:03,200
neurologist came in and I was
sitting there with my mom.

252
00:14:03,200 --> 00:14:05,840
And neurologist says, I think
what we're dealing with here is

253
00:14:05,840 --> 00:14:09,440
called a glioblastoma.
And I'd heard the term before,

254
00:14:09,440 --> 00:14:11,520
but didn't really, it didn't
really make a connection with

255
00:14:11,520 --> 00:14:13,800
me.
And he kind of said, he said,

256
00:14:13,800 --> 00:14:16,560
listen, this is not good.
And I said, wait a second.

257
00:14:16,560 --> 00:14:18,280
I said there's all kinds of
technology.

258
00:14:18,280 --> 00:14:19,440
There's all kinds of great
things.

259
00:14:19,440 --> 00:14:22,080
I hear people, I have clients
who have had brain surgery and

260
00:14:22,080 --> 00:14:23,800
they're like, it's no big deal.
He goes, no, Ralph, you got to

261
00:14:23,800 --> 00:14:26,640
understand something.
This is one of the most

262
00:14:26,640 --> 00:14:29,280
aggressive tumors that you can
get.

263
00:14:29,520 --> 00:14:31,240
And he said the really
interesting thing, and I'm not

264
00:14:31,240 --> 00:14:34,120
going to take a sidetrack, is we
don't usually see those in older

265
00:14:34,120 --> 00:14:35,800
people.
We used to see those with people

266
00:14:35,800 --> 00:14:38,360
in their 50s.
Now I'm 50 at the time and I'm

267
00:14:38,360 --> 00:14:40,040
thinking, oh, great, what have I
got to deal with?

268
00:14:40,080 --> 00:14:42,640
And it's still in the back of my
mind today, you know, is this a

269
00:14:42,640 --> 00:14:45,920
genetic thing?
So anyway, so my mother had same

270
00:14:45,920 --> 00:14:46,840
mind.
She goes, all right, well, what

271
00:14:46,840 --> 00:14:48,840
can we do?
And the doctor says, well, we

272
00:14:48,840 --> 00:14:52,360
can go in and operate and see
what we can do to to see what's

273
00:14:52,360 --> 00:14:54,760
going on.
So they did the operation and

274
00:14:55,120 --> 00:14:59,240
eight hours later, bleeding,
there was 7 or 8 surgeons called

275
00:14:59,240 --> 00:15:02,400
in and, you know, they came to
us in the waiting room and said,

276
00:15:02,400 --> 00:15:05,680
listen, we did everything we
can, but we got as much of as we

277
00:15:05,680 --> 00:15:07,720
can.
But your mom did not do well.

278
00:15:08,440 --> 00:15:11,280
And so we went, you know, they,
they, they did the best they

279
00:15:11,280 --> 00:15:12,840
can.
You know, they did the surgery.

280
00:15:12,840 --> 00:15:16,040
She they actually left the piece
of her cranium off because of

281
00:15:16,040 --> 00:15:20,240
the swelling in the brain.
And I remember going back to the

282
00:15:20,240 --> 00:15:25,800
room, Mark, and to to say that
my mother never really gained

283
00:15:25,800 --> 00:15:28,120
functionality again would be an
understatement.

284
00:15:29,040 --> 00:15:33,560
It just totally ravaged her.
And the good news about all of

285
00:15:33,560 --> 00:15:36,280
this is that she had made a
decision that she didn't want to

286
00:15:36,280 --> 00:15:39,680
have a life sustained on tubes
and all this kind of stuff.

287
00:15:39,680 --> 00:15:42,920
And which was a blessing because
it was easier for my sister and

288
00:15:42,920 --> 00:15:44,760
I to make the hard decision we
had to make.

289
00:15:45,720 --> 00:15:48,320
And that hard decision was, you
know, we we're going to see and,

290
00:15:48,320 --> 00:15:50,360
and, and doctor said, listen,
there's really no help.

291
00:15:50,360 --> 00:15:52,600
There's no hope here.
And that's the reason I'm

292
00:15:52,600 --> 00:15:54,880
sporting this charity, because
they're really working to find

293
00:15:54,880 --> 00:15:57,120
hope.
But just to continue the end of

294
00:15:57,120 --> 00:15:59,600
the story here, we got to a
point we were sitting there

295
00:15:59,600 --> 00:16:02,080
having a conference with the
surgeon trying to decide what

296
00:16:02,080 --> 00:16:04,480
was the next step.
And he says, you know, we can go

297
00:16:04,480 --> 00:16:05,760
in and try to do some more
operation.

298
00:16:05,760 --> 00:16:08,200
He says, Ralph, but we're not
going to be successful with

299
00:16:08,200 --> 00:16:10,520
this.
This is the type of tumor that

300
00:16:10,720 --> 00:16:13,520
it kind of spiders out.
It goes out in all directions

301
00:16:13,520 --> 00:16:15,520
within the brain.
So there's really no way to get

302
00:16:15,520 --> 00:16:17,760
it.
And he said if it were my

303
00:16:17,760 --> 00:16:21,280
mother, I would let her go.
And just to attribute to how my

304
00:16:21,280 --> 00:16:24,680
mom is a fighter, we took her
off all life support.

305
00:16:24,680 --> 00:16:27,440
She lived for eight days with no
life support.

306
00:16:28,520 --> 00:16:31,920
And it was Sunday, March 19th,
2023.

307
00:16:32,560 --> 00:16:35,240
And they had put her into
Hospice in the hospital.

308
00:16:36,520 --> 00:16:40,600
And I had the honor mark of
letting her go.

309
00:16:42,200 --> 00:16:45,920
I held her hand.
Listen, I'm Christian guy, I'll

310
00:16:45,920 --> 00:16:49,880
see her again, but it changed
me.

311
00:16:51,960 --> 00:16:57,560
And if we can find a way for
families that not have to endure

312
00:16:57,560 --> 00:17:00,560
this, that's why I'm supporting
this charity, Mark.

313
00:17:02,200 --> 00:17:04,640
Thank you, Ralph.
I appreciate you sharing.

314
00:17:04,640 --> 00:17:08,640
I appreciate, I appreciate you
being comfortable enough to

315
00:17:09,280 --> 00:17:13,520
share your emotions around this.
I can only imagine how it feels.

316
00:17:13,520 --> 00:17:17,280
I am grateful that I have both
my parents and I've had I'm

317
00:17:17,280 --> 00:17:20,040
getting emotional just because I
don't know if it's because

318
00:17:20,040 --> 00:17:23,680
you're emotional or not, but I
have parents that have both gone

319
00:17:23,680 --> 00:17:27,000
through cancer.
My mom breast cancer twice.

320
00:17:27,839 --> 00:17:34,400
My father actually had lymphoma
on his brain, which is very rare

321
00:17:34,480 --> 00:17:38,840
with lymphoma and it's changed
him.

322
00:17:40,640 --> 00:17:44,320
He's still with us.
He's still a functioning human

323
00:17:44,320 --> 00:17:47,600
being and it's changed him.
He's definitely got some brain

324
00:17:47,600 --> 00:17:50,880
damage from that.
So I certainly can relate in

325
00:17:50,880 --> 00:17:52,680
some ways.
But in others, you know, I

326
00:17:52,680 --> 00:17:57,640
haven't lost a parent and I can
only imagine what it's like to

327
00:17:57,640 --> 00:18:02,320
say goodbye in that way.
So thank you for for sharing.

328
00:18:02,320 --> 00:18:07,440
And we want to talk for a little
bit a moment about the actual

329
00:18:07,440 --> 00:18:09,880
charity.
So if anybody wants to support

330
00:18:09,880 --> 00:18:12,920
them and what they do, I think
this is a good time to to share

331
00:18:12,920 --> 00:18:14,800
about them.
Yeah, Thank you, Mark.

332
00:18:14,800 --> 00:18:18,000
And the whole point of the
foundation is to really

333
00:18:18,000 --> 00:18:21,800
understand a disease which is
just about, you know, they can

334
00:18:21,800 --> 00:18:23,440
go in and operate and they do a
lot of things.

335
00:18:23,440 --> 00:18:25,720
But the problem with this
particular disease, it usually

336
00:18:25,720 --> 00:18:30,400
strikes people in their late 40s
and 50s, and it's honestly a

337
00:18:30,400 --> 00:18:32,560
death sentence.
I've known several people sense

338
00:18:32,560 --> 00:18:35,560
this, who have gotten this.
And yeah, they can sustain your

339
00:18:35,560 --> 00:18:37,200
life.
They go in and they go and take

340
00:18:37,200 --> 00:18:40,520
the tumor out what they can.
But it just doesn't resolve the

341
00:18:40,520 --> 00:18:41,960
issue.
And, and I love what this

342
00:18:41,960 --> 00:18:46,120
organization is doing because
they're trying to find a way to

343
00:18:46,120 --> 00:18:49,840
give people hope.
And, you know, if we can find a

344
00:18:49,840 --> 00:18:53,120
way to give people hope, I, I
don't know that there's a

345
00:18:53,120 --> 00:18:54,760
solution.
I don't know that there's a

346
00:18:54,760 --> 00:18:58,720
cure, but to just give a family
because if you think about it,

347
00:18:58,720 --> 00:19:00,880
Mark, you and I are about that
age, right?

348
00:19:01,480 --> 00:19:05,440
And we have children, we have
spouses, we have all those

349
00:19:05,440 --> 00:19:08,200
things.
And, you know, I guess my mom

350
00:19:08,200 --> 00:19:10,640
had lived a full life.
So I, I don't want to diminish

351
00:19:10,640 --> 00:19:13,440
that, you know, so there was
part of it was like, you know,

352
00:19:13,600 --> 00:19:18,000
OK, she got to see kids and
grandkids and, and all that sort

353
00:19:18,000 --> 00:19:20,120
of thing.
But if we can give somebody

354
00:19:20,120 --> 00:19:22,760
hope, that's why I really want
to support this organization

355
00:19:22,760 --> 00:19:27,000
'cause I think they're at the
forefront of trying to find ways

356
00:19:27,600 --> 00:19:32,200
to to solve this problem.
So I appreciate you giving me

357
00:19:32,200 --> 00:19:34,320
the time today on the show.
I apologize for getting a little

358
00:19:34,320 --> 00:19:35,040
emotional.
It's.

359
00:19:35,040 --> 00:19:37,200
Just.
With, with today being three

360
00:19:37,200 --> 00:19:41,760
years that it her, her picture
hangs in my office and I know

361
00:19:41,760 --> 00:19:43,880
I've shared with the group I
write songs and I wrote a song

362
00:19:43,880 --> 00:19:46,080
about that feeling of letting
her go.

363
00:19:46,600 --> 00:19:50,120
And yeah, it it is interesting
as an adult.

364
00:19:50,120 --> 00:19:53,360
Like you just don't realize how
much you miss your mom until you

365
00:19:53,360 --> 00:19:55,120
do miss her.
So here's my 1 take away for

366
00:19:55,120 --> 00:19:56,440
today.
Call your mom today.

367
00:19:57,200 --> 00:20:00,280
Yeah, speak to your mom today.
I would love to have that

368
00:20:00,280 --> 00:20:04,160
opportunity again.
If so, if nothing else, if maybe

369
00:20:04,240 --> 00:20:09,120
you aren't able to donate and
you do have a mom or a mom

370
00:20:09,120 --> 00:20:12,840
figure in your life, that's a
great way to honor Ralph the

371
00:20:12,840 --> 00:20:17,920
charity, his mom as well.
And just as what a surprising

372
00:20:17,920 --> 00:20:21,280
coincidence that this is the
three-year anniversary today on

373
00:20:21,280 --> 00:20:24,640
a day that we are recognizing
different charities and

374
00:20:24,640 --> 00:20:28,720
nonprofits supporting causes
that are very close to us,

375
00:20:28,720 --> 00:20:30,880
especially in this case, close
to you, Ralph.

376
00:20:31,280 --> 00:20:33,400
Thank you again for sharing
that.

377
00:20:33,760 --> 00:20:37,360
I know Jonah is going to be
joining us here shortly and I

378
00:20:37,360 --> 00:20:38,800
don't want to cut anyone else
short.

379
00:20:38,840 --> 00:20:43,160
So I'm going to go to one of our
guests on stage.

380
00:20:43,840 --> 00:20:46,360
Guests, meaning guests from the
audience, not guests of the

381
00:20:46,360 --> 00:20:50,240
community by any stretch.
Janae, welcome.

382
00:20:50,560 --> 00:20:53,880
Good morning.
Do you have a charity, a

383
00:20:53,880 --> 00:20:57,480
nonprofit, an organization that
you'd like to highlight today?

384
00:20:57,480 --> 00:21:00,000
What charity or nonprofit would
that be?

385
00:21:00,160 --> 00:21:03,760
Good morning, everyone.
After that one, I don't think.

386
00:21:04,680 --> 00:21:06,240
We don't all have to get
emotional.

387
00:21:06,240 --> 00:21:08,800
That's not the point of this.
Yeah, but it but it, but it was

388
00:21:08,800 --> 00:21:12,480
reminding me of my grandmother's
who had to, you know, go through

389
00:21:13,320 --> 00:21:15,120
some of these similar
situations.

390
00:21:15,320 --> 00:21:19,560
Not as crazy, but one of my
grandmother's she, she went in,

391
00:21:19,560 --> 00:21:23,400
she was perfectly fine.
She goes in for a routine

392
00:21:23,400 --> 00:21:26,680
checkup and they're like, oh, we
need to do a bypass surgery

393
00:21:26,680 --> 00:21:28,800
because you're some of the
blockages.

394
00:21:29,480 --> 00:21:33,600
They do the surgery and then
accidentally they pinprick her

395
00:21:33,600 --> 00:21:35,320
lungs when they're closing her
up.

396
00:21:35,880 --> 00:21:40,200
So she ends up being in the
hospital for 10 years, 10 years,

397
00:21:40,400 --> 00:21:41,800
yes.
Whoa.

398
00:21:42,160 --> 00:21:46,720
Because because she was in her
70s when she went in seeing,

399
00:21:46,800 --> 00:21:49,440
seeing my grandmothers in that
situation.

400
00:21:49,440 --> 00:21:53,160
It's it's there's no, there's no
charity for such thing like

401
00:21:53,160 --> 00:21:56,560
that.
I mean, if, if they can just do

402
00:21:56,560 --> 00:21:59,240
a better job at treating
patients.

403
00:21:59,480 --> 00:22:01,040
If there's a charity for that.
I don't know.

404
00:22:02,560 --> 00:22:09,080
But for many years, since I've
came out to the States, I worked

405
00:22:09,080 --> 00:22:13,160
and volunteered with Islamic
Relief for many, many years and

406
00:22:13,160 --> 00:22:15,440
they provide support all over
the world.

407
00:22:15,440 --> 00:22:19,400
So that's the charity that I'm,
I'm going to be supporting some

408
00:22:19,400 --> 00:22:22,560
other charities and, and other
organizations that I work with

409
00:22:22,880 --> 00:22:25,640
that are local.
One of them is care.

410
00:22:25,640 --> 00:22:29,840
They're the Council on American
Islamic Relations providing

411
00:22:29,920 --> 00:22:34,360
legal support for Muslims who
might have been, you know,

412
00:22:35,000 --> 00:22:38,520
wrongly accused or, you know,
whatever, whatever have you.

413
00:22:38,520 --> 00:22:41,400
And they're fighting on the
behalf of the civil rights of

414
00:22:41,400 --> 00:22:43,960
people in the US.
So those are some of the

415
00:22:43,960 --> 00:22:46,880
organizations that I would
highlight because they're doing

416
00:22:46,920 --> 00:22:50,600
the work that most people, they
don't know where to go right

417
00:22:50,600 --> 00:22:53,400
when you have a lawyer issue who
you're going to go to.

418
00:22:53,400 --> 00:22:56,040
So those are the some of the
organizations that I support.

419
00:22:56,800 --> 00:22:58,000
Awesome.
And if you want to put, if

420
00:22:58,000 --> 00:23:01,480
there's any link that you can
provide, put it in the chat.

421
00:23:01,480 --> 00:23:02,920
We will make sure it's in the
show notes.

422
00:23:02,920 --> 00:23:05,360
We'll try to get it on our
podcasting morning

423
00:23:05,360 --> 00:23:10,280
chat.com/charitypage.
And Janae, back to the first

424
00:23:10,280 --> 00:23:14,040
thing that you were sharing.
There are organizations that I,

425
00:23:14,040 --> 00:23:17,440
I, they wouldn't put it as
fighting malpractice.

426
00:23:17,440 --> 00:23:20,840
That's just my terminology.
But there are some out there.

427
00:23:20,840 --> 00:23:24,680
There's the Patient Advocate
Foundation that helps patients

428
00:23:24,680 --> 00:23:27,440
navigate care insurance access
issues.

429
00:23:27,640 --> 00:23:31,200
There's also the National
Patient Advocate Foundation.

430
00:23:31,640 --> 00:23:35,800
There's the Patient Safety
Movement Foundation as well.

431
00:23:36,040 --> 00:23:39,000
So there are several that you
could probably indirectly

432
00:23:39,320 --> 00:23:43,080
support that specific cause.
But Janae, thank you for sharing

433
00:23:43,080 --> 00:23:45,560
both of those this morning.
I really appreciate it.

434
00:23:45,840 --> 00:23:47,320
Thank you.
Yeah.

435
00:23:47,560 --> 00:23:50,720
And Janae, do you want to share
anything about your website

436
00:23:50,720 --> 00:23:53,360
while we're chatting about your
new product coming out?

437
00:23:53,480 --> 00:23:55,600
Sure.
So the the new product coming

438
00:23:55,600 --> 00:23:59,320
out is called pod glue.
It's the podcasters operating

439
00:23:59,320 --> 00:24:04,200
system to focus on building
relationships over episodes

440
00:24:04,200 --> 00:24:07,680
because as podcasters, we think
that our episodes are the

441
00:24:07,680 --> 00:24:10,560
product, but the episode are
just a vehicle.

442
00:24:10,560 --> 00:24:13,000
Just like here and on Podcasting
Morning Chat.

443
00:24:13,000 --> 00:24:19,720
Every episode we come closer, we
become friends over life.

444
00:24:20,040 --> 00:24:22,800
It's an amazing way to start a
relationship, start a

445
00:24:22,800 --> 00:24:26,040
friendship, start a partnership,
whatever have you.

446
00:24:26,040 --> 00:24:30,840
I mean, just six months ago we
had our good friend Ralph join

447
00:24:30,840 --> 00:24:32,840
Podcasting Morning Chat every
single day.

448
00:24:32,840 --> 00:24:37,400
And now where we at he's, you
know, he's executive producer

449
00:24:37,640 --> 00:24:41,200
and as well as being the the
title sponsor for Empire

450
00:24:41,200 --> 00:24:44,520
Podcasting conference coming
later year.

451
00:24:44,520 --> 00:24:48,160
So again, podcasting is not a
product.

452
00:24:48,400 --> 00:24:52,800
We talk about it monetizing, we
talk about it making money for

453
00:24:52,800 --> 00:24:56,160
us, but that's not the point.
The point is to build

454
00:24:56,160 --> 00:24:59,440
relationships, build
communication and use it as a

455
00:24:59,440 --> 00:25:03,040
vehicle to connect deeper with
other people.

456
00:25:03,040 --> 00:25:07,040
I think, and I think that's the
thing that we all miss with

457
00:25:07,040 --> 00:25:10,760
podcasting and a lot of people
see that.

458
00:25:11,280 --> 00:25:15,840
And if anybody's on the fence of
starting a podcast, don't

459
00:25:16,320 --> 00:25:18,680
because you're going to build so
many more connections, so many

460
00:25:18,680 --> 00:25:22,040
more people over the world.
It's going to it's going to be a

461
00:25:22,040 --> 00:25:25,520
game changer.
So PRM is the book that's coming

462
00:25:25,520 --> 00:25:28,360
out same day.
I've got prmbook.com.

463
00:25:28,360 --> 00:25:31,160
So if you want to go on the list
and then Pod Glue is the

464
00:25:31,160 --> 00:25:33,800
implementation of that
philosophy.

465
00:25:33,800 --> 00:25:36,880
Thank you so much.
You are welcome, Janae.

466
00:25:36,880 --> 00:25:40,880
Thank you.
Pod, glue.com, prm.com, that's

467
00:25:40,880 --> 00:25:43,520
what you said.
Prmbook.com, right?

468
00:25:43,520 --> 00:25:48,760
Prmbook.com Thank you, Janae.
And now I know that my buddy

469
00:25:48,760 --> 00:25:55,760
Jonah, who is the reason for my
support of the CMTAI know he is.

470
00:25:55,760 --> 00:25:59,080
He just texted me.
He's heading to his office.

471
00:25:59,480 --> 00:26:03,920
So I'm trying to think of what
should I do here while we wait.

472
00:26:03,920 --> 00:26:05,680
All right, I know what we're
going to do here.

473
00:26:09,800 --> 00:26:12,680
We're going to spin the wheel
once more.

474
00:26:12,680 --> 00:26:15,400
Yes, I know it might feel a
little jarring after we're

475
00:26:15,400 --> 00:26:18,240
having some deeper conversation.
Then all of a sudden I played

476
00:26:18,240 --> 00:26:22,280
the silly Jingle and now I'm
spinning the silly wheel.

477
00:26:22,280 --> 00:26:26,840
But the silly wheel has good
value to bring us, so let's see

478
00:26:26,840 --> 00:26:28,480
where this lands while we're
killing.

479
00:26:28,480 --> 00:26:32,120
Time for Jonah to join us.
This is a good one.

480
00:26:32,880 --> 00:26:35,600
I have a feeling we could hear
from Jinnade on this one, as

481
00:26:35,600 --> 00:26:39,000
well as one of our tech members
of the community.

482
00:26:39,680 --> 00:26:44,400
ID 3 tags.
What are ID 3 tags?

483
00:26:44,400 --> 00:26:48,400
Now I have a very sloppy
definition I could give, but I'm

484
00:26:48,400 --> 00:26:51,440
curious if anybody would be
willing to give a little more

485
00:26:51,440 --> 00:26:55,920
clear and concise 1.
I'll take that.

486
00:26:55,960 --> 00:27:01,760
I've edited ID 3 tags for over
30 years and that's specifically

487
00:27:01,760 --> 00:27:05,120
because when Napster was coming
on you, you'd get these music

488
00:27:05,120 --> 00:27:07,840
and and all of the data would be
all over the place.

489
00:27:07,840 --> 00:27:12,880
And do you discover ID 2 tags?
Essentially it's a metadata

490
00:27:12,880 --> 00:27:16,880
container embedded within audio
files, mostly MP threes.

491
00:27:17,200 --> 00:27:20,880
So you can store content such as
artist, title, album, genre,

492
00:27:20,880 --> 00:27:23,520
track number and cover art.
So I would be sitting there on

493
00:27:23,520 --> 00:27:28,640
iTunes and different apps and
editing ID 3 tags, attaching a

494
00:27:28,640 --> 00:27:31,680
cover art to it.
So it brings a lot of joy.

495
00:27:31,760 --> 00:27:33,760
Thank you, Janae.
I think you got a little cut off

496
00:27:33,760 --> 00:27:37,760
there at the end.
All right, So Jonah, there is

497
00:27:37,760 --> 00:27:41,680
some good echo going on.
Well, welcome, Jonah Berger.

498
00:27:42,920 --> 00:27:46,200
Thank you.
OK, well, let's get into it.

499
00:27:46,200 --> 00:27:50,280
So Jonah is here, as I've shared
multiple times this week and

500
00:27:50,280 --> 00:27:53,680
today, Jonah is my closest,
dearest friend.

501
00:27:53,680 --> 00:27:58,760
We've been friends since I was
about 14 years old, Jonah about

502
00:27:58,760 --> 00:28:01,320
50 or he was 15 years old at the
time.

503
00:28:01,320 --> 00:28:04,400
We met at summer camp, Camp
Ramblewood.

504
00:28:05,120 --> 00:28:09,520
And that has been a big part of
our lives for sure.

505
00:28:09,760 --> 00:28:13,440
And to this day, our some of our
closest friends are all from

506
00:28:13,440 --> 00:28:17,080
camp.
My wife is from camp and Jonah

507
00:28:17,080 --> 00:28:19,760
married someone not from our
camp, but somebody he met at

508
00:28:19,760 --> 00:28:23,440
camp.
So it's very special to us and I

509
00:28:23,440 --> 00:28:28,360
wanted to highlight CMT because
yes, Jonah was born with CMT.

510
00:28:28,360 --> 00:28:30,920
It is a hereditary disease in
most cases.

511
00:28:30,920 --> 00:28:34,360
I know that there can be
spontaneous cases as well, but

512
00:28:34,360 --> 00:28:38,480
in the majority of the cases it
is passed down South.

513
00:28:38,480 --> 00:28:42,560
Jonah, for anyone hearing about
CMT for the first time today,

514
00:28:42,560 --> 00:28:46,400
can you tell us what it is and
what daily life with it can look

515
00:28:46,400 --> 00:28:47,360
like?
OK.

516
00:28:47,760 --> 00:28:53,040
CMT is a condition where in
what's called the periphery of

517
00:28:53,040 --> 00:28:54,680
our bodies.
So from our elbows to our

518
00:28:54,680 --> 00:28:59,680
fingers and our knees to our
toes, the nerves that are coated

519
00:28:59,680 --> 00:29:02,680
in a myelin sheath, that's the
coating on your nerves.

520
00:29:02,920 --> 00:29:05,520
Our myelin sheath in those parts
of our bodies are not

521
00:29:05,800 --> 00:29:08,040
functioning the way that they're
supposed to.

522
00:29:08,040 --> 00:29:11,360
They're too thin, whatever.
So the messages from our brain

523
00:29:11,360 --> 00:29:14,440
to the muscles between our
elbows and fingers and knees and

524
00:29:14,440 --> 00:29:18,800
toes don't get there as clearly
and as fast as they need to.

525
00:29:19,040 --> 00:29:22,920
And they're the messages slowing
down 'cause the muscles to be

526
00:29:22,920 --> 00:29:25,760
weak.
And mostly my wrists and hands

527
00:29:25,760 --> 00:29:28,160
and ankles and feet.
And what that looks like

528
00:29:28,160 --> 00:29:31,840
day-to-day is that when I get up
in the morning I have to have a

529
00:29:31,920 --> 00:29:33,880
instead of pop my shoes and
socks on.

530
00:29:33,880 --> 00:29:43,280
I have a 5 minute process to put
on leg braces and shoes and I

531
00:29:43,280 --> 00:29:45,640
need some help buttoning my
shirts.

532
00:29:45,920 --> 00:29:49,600
I need some help with fine
motor, little things with my

533
00:29:49,600 --> 00:29:53,720
hands and the other thing is
tripping.

534
00:29:53,880 --> 00:29:56,680
I fall a good bit, I trip a good
bit.

535
00:29:56,920 --> 00:30:00,760
I'm clumsier than most just
because of lack of balance and

536
00:30:00,760 --> 00:30:04,200
that has proven over the years
to be the biggest frustration I

537
00:30:04,200 --> 00:30:06,080
would say.
Yeah, I hear you.

538
00:30:06,080 --> 00:30:10,640
And the the fine motor skills is
something that I know I'm always

539
00:30:10,640 --> 00:30:14,560
very sensitive to.
I know that and about you, and I

540
00:30:14,560 --> 00:30:18,440
know how it always reminds me
when I see you dealing with it,

541
00:30:18,440 --> 00:30:22,120
just how challenging CMT is
because the way you operate,

542
00:30:22,200 --> 00:30:24,240
great.
People quickly forget that you

543
00:30:24,240 --> 00:30:27,760
have CMT, right?
So when I see you struggling,

544
00:30:27,800 --> 00:30:30,240
putting, you know, buttoning a
shirt, for example, it's like,

545
00:30:30,240 --> 00:30:33,080
Oh yeah, that's right, Jonah has
CMT.

546
00:30:33,080 --> 00:30:34,320
You can't do that.
I'm proud.

547
00:30:34,320 --> 00:30:37,800
I'm a big personality and I'm a
very kind of dominant

548
00:30:37,800 --> 00:30:41,600
personality, and I think that
that echoes in strength.

549
00:30:41,840 --> 00:30:45,560
And so when you see a big
personality deal with weakness,

550
00:30:45,560 --> 00:30:47,960
it's kind of a yeah, a
difference.

551
00:30:47,960 --> 00:30:50,040
It's a little shocking.
Almost totally.

552
00:30:50,160 --> 00:30:54,080
So Jonah, this was a question
that I know Dr. Who's with us

553
00:30:54,080 --> 00:30:56,240
here today.
She had asked the other day.

554
00:30:56,840 --> 00:31:00,800
It was just about when did you
first started started noticing

555
00:31:01,400 --> 00:31:03,280
CMT?
When did you first realize it

556
00:31:03,280 --> 00:31:05,800
was going to affect your life in
a lasting way?

557
00:31:05,800 --> 00:31:08,800
And can you share how living
with CMT has shaped you over

558
00:31:09,000 --> 00:31:13,760
your lifetime?
Good morning, Dr. Good question.

559
00:31:13,760 --> 00:31:17,400
I I remember the moment actually
because it's the first page in

560
00:31:17,400 --> 00:31:20,080
the book that I wrote about my
life with CMT.

561
00:31:20,520 --> 00:31:25,520
I was in gym class one day, I
think it was the 6th grade, and

562
00:31:26,280 --> 00:31:30,760
I hit the ball over the second
baseman and I ran towards first

563
00:31:31,120 --> 00:31:33,240
and I was like, I hit it over
the second baseman, man.

564
00:31:33,240 --> 00:31:36,280
I got plenty of time and I ran
as fast as I could, as hard as I

565
00:31:36,280 --> 00:31:38,160
could.
And I remember for the first

566
00:31:38,160 --> 00:31:42,160
time consciously feeling like I,
the way I phrase it in my book,

567
00:31:42,160 --> 00:31:45,280
my spirit was running faster
than my legs were.

568
00:31:45,640 --> 00:31:49,440
And that was such a real
feeling.

569
00:31:50,640 --> 00:31:54,240
And I write in the book, I wish
my 50 year old self could be

570
00:31:54,240 --> 00:31:56,600
there in that moment to be like,
don't worry kid, you're going to

571
00:31:56,600 --> 00:31:58,880
be OK.
Like it's all going to be fine.

572
00:31:58,880 --> 00:32:04,040
Because in now from 54 years
old, I can tell you not only has

573
00:32:04,040 --> 00:32:07,920
CMT turned out to be tolerable,
it has molded who I am

574
00:32:07,920 --> 00:32:10,720
completely.
Yesterday I spoke at the middle

575
00:32:10,720 --> 00:32:14,400
school in our town in Michigan
to the 6th, 7th and 8th graders

576
00:32:14,400 --> 00:32:18,280
about appreciating each other's
differences, not making fun of

577
00:32:18,280 --> 00:32:21,280
them, but understanding them and
learning to talk to each other.

578
00:32:21,280 --> 00:32:25,600
And I just, there's something so
profound about finding the

579
00:32:25,600 --> 00:32:30,120
positive in a negative.
And my mom taught me to do that.

580
00:32:30,440 --> 00:32:34,760
And I have very, very
consciously followed that lead

581
00:32:34,760 --> 00:32:38,120
because it has led me to this
understanding that if your

582
00:32:38,120 --> 00:32:41,720
perspective is positive, your
challenges can actually be

583
00:32:41,720 --> 00:32:45,160
positive.
They can be shaping to your life

584
00:32:45,160 --> 00:32:47,040
and to your choices and your
perspective.

585
00:32:47,240 --> 00:32:50,840
If your perspective is negative,
the exact same thing is true.

586
00:32:51,040 --> 00:32:54,960
Everything can feel negative.
So we don't have control over

587
00:32:55,080 --> 00:32:58,560
what we are dealt often, but we
have full control over what we

588
00:32:58,560 --> 00:33:01,280
do with it.
Yeah, that's all about your

589
00:33:01,280 --> 00:33:05,000
reticular activating system.
That's the thing that when you

590
00:33:05,160 --> 00:33:08,840
have a certain perspective, you
see more of that perspective.

591
00:33:08,840 --> 00:33:09,920
Right.
Right.

592
00:33:09,920 --> 00:33:12,560
So it's like, yeah, if you're
going to be really down and

593
00:33:12,560 --> 00:33:16,200
negative about a situation like
having CMT, that's right.

594
00:33:16,200 --> 00:33:17,680
That's what you're going to see
more of.

595
00:33:17,680 --> 00:33:20,320
You're going to see a lot of
negativity, a lot of struggle,

596
00:33:20,400 --> 00:33:22,240
right.
But then Jonah, on the other

597
00:33:22,240 --> 00:33:25,760
side of that coin, being so
positive, then you start to see

598
00:33:25,760 --> 00:33:30,280
all the positive stuff around
CMT, like the CMTA, which I know

599
00:33:30,280 --> 00:33:34,800
now you are also employed by,
you are, and I don't know your

600
00:33:34,800 --> 00:33:36,920
exact title.
I say you're the youth director,

601
00:33:36,920 --> 00:33:38,080
but I'm not sure if that's
actually.

602
00:33:38,080 --> 00:33:41,440
Officially, I am the National
Youth Youth Programs Manager.

603
00:33:41,560 --> 00:33:42,720
Got it.
Yes, got it.

604
00:33:42,720 --> 00:33:47,080
And the big thing that Jonah
does the the Super Bowl of his

605
00:33:47,080 --> 00:33:51,800
job is camp footprint, which I
have shared with you all before.

606
00:33:51,800 --> 00:33:55,640
I've been I for the first time
after 10 years of him doing it,

607
00:33:55,880 --> 00:33:58,920
I came and volunteered as a
counselor there and I'm doing it

608
00:33:58,920 --> 00:34:01,480
twice this year.
So really excited about that.

609
00:34:01,480 --> 00:34:03,160
We can talk a little bit more
about that.

610
00:34:03,160 --> 00:34:05,400
But first, DRI, think you had
another question.

611
00:34:05,880 --> 00:34:08,639
I do.
So, Jonah, thank you so much for

612
00:34:08,639 --> 00:34:12,520
being with us today.
So I know that CMT has been

613
00:34:12,520 --> 00:34:14,920
around for many, many, many,
many years.

614
00:34:15,080 --> 00:34:19,440
And a lot of times when people
give money to a charity, they

615
00:34:19,440 --> 00:34:22,480
think it's probably not doing
any good because it's been

616
00:34:22,480 --> 00:34:25,760
around for so long.
So I would like for you to talk

617
00:34:25,760 --> 00:34:35,960
about the advances that CMT has
made in research, maybe in like

618
00:34:35,960 --> 00:34:41,679
simple hacks that we call hacks
nowadays from the time that you

619
00:34:41,679 --> 00:34:45,520
got it to present.
Yep, great question.

620
00:34:45,520 --> 00:34:50,719
So up until the last 10 years or
so, it's been all hacks.

621
00:34:50,719 --> 00:34:54,719
How can we help you to figure
out life and navigate life with

622
00:34:54,719 --> 00:34:56,520
CMT?
Because there is no treatment.

623
00:34:56,719 --> 00:35:00,360
There's still officially is no
treatment, but about 10 to 15

624
00:35:00,360 --> 00:35:05,600
years ago, the first half in
curing a disease is to identify

625
00:35:05,600 --> 00:35:08,960
what's the problem.
Then it becomes easier because

626
00:35:08,960 --> 00:35:11,200
you just have to learn how to
fix that problem.

627
00:35:11,360 --> 00:35:16,120
We learned what the problem is,
the overproduction of PMP 22,

628
00:35:16,120 --> 00:35:19,640
truth be told.
And since that day, now we are

629
00:35:19,640 --> 00:35:24,280
literally in the home stretch of
starting to find a cure.

630
00:35:24,440 --> 00:35:27,480
And the way I always phrase it
to people who don't understand

631
00:35:27,480 --> 00:35:31,240
science like myself is that I
met with Doctor Shy, who's the

632
00:35:31,240 --> 00:35:37,240
world's leading researcher for
CMT, and I got up on his table.

633
00:35:37,240 --> 00:35:41,400
This is like 1520 years ago now.
I got up on his table and I was

634
00:35:41,400 --> 00:35:43,320
being a smart ass.
And I said, Doc, when are you

635
00:35:43,320 --> 00:35:44,680
going to cure this thing
already?

636
00:35:45,120 --> 00:35:47,160
And he looked me square in the
eye with a straight face.

637
00:35:47,160 --> 00:35:50,640
And he said, in your lifetime,
that's how close they are.

638
00:35:50,840 --> 00:35:52,760
And I'm 54 y'all.
I'm getting older.

639
00:35:52,760 --> 00:35:56,080
So, you know, it's, it's that
fast.

640
00:35:56,080 --> 00:35:58,920
The other thing I would tell you
to that question, Dr. is that

641
00:35:59,920 --> 00:36:04,120
often times in curing a disease,
different researchers, different

642
00:36:04,120 --> 00:36:06,520
countries researchers are
competing with each other

643
00:36:06,520 --> 00:36:09,360
because whoever finds it first
gets the money, gets the fame,

644
00:36:09,360 --> 00:36:13,280
blah, blah, blah.
The world's researchers, when

645
00:36:13,280 --> 00:36:16,520
the CMTA researchers, Dr. Shai
and his team reached out to

646
00:36:16,520 --> 00:36:19,240
them, all came together for a
meeting.

647
00:36:19,240 --> 00:36:23,200
And the Long story short is they
said we are so close with this

648
00:36:23,200 --> 00:36:26,920
thing that if we work together,
we can cure this thing 10 times

649
00:36:26,920 --> 00:36:28,640
faster.
If we keep competing, it's going

650
00:36:28,640 --> 00:36:30,760
to be slower.
And not only did everyone agree,

651
00:36:30,760 --> 00:36:34,200
but they agreed and signed on to
what's called the Star Alliance.

652
00:36:34,680 --> 00:36:37,040
And the star is kind of the CMTA
symbol.

653
00:36:37,240 --> 00:36:39,920
The Star Alliance means that all
the world's leading researchers

654
00:36:39,920 --> 00:36:43,320
decided instead of the chance
that we could get the credit,

655
00:36:43,480 --> 00:36:45,640
let's work together.
Because if we do, we can

656
00:36:45,640 --> 00:36:48,080
genuinely cure this thing sooner
than later.

657
00:36:48,440 --> 00:36:53,880
So it's a very exciting time.
And we got a five star rating

658
00:36:53,880 --> 00:36:58,760
from national nonprofit, which
means that we do everything

659
00:36:58,760 --> 00:37:03,760
right basically with the
donations, 94% of donations go

660
00:37:03,760 --> 00:37:06,920
directly to research.
Amazing.

661
00:37:07,000 --> 00:37:09,520
Great question, Doctor, too.
And I think that's a really good

662
00:37:09,520 --> 00:37:13,480
question to ask on a day like
today when we were talking about

663
00:37:13,480 --> 00:37:15,680
all these different
organizations and nonprofits

664
00:37:15,680 --> 00:37:17,960
that we're interested in
supporting.

665
00:37:18,520 --> 00:37:20,560
All right, Jonah, I know you
have a lot going on.

666
00:37:20,640 --> 00:37:23,640
This Ralph's question.
Anyone in a 10 gallon hat gets

667
00:37:23,760 --> 00:37:27,480
gets to ask a question.
This is Ralph's Thursday attire.

668
00:37:27,480 --> 00:37:30,760
He actually has a farm with
cows, so that is a legitimate

669
00:37:30,760 --> 00:37:32,600
cowboy hat.
Go for it, Ralph.

670
00:37:32,760 --> 00:37:34,000
Yeah.
And Jonah, I just want to

671
00:37:34,000 --> 00:37:35,640
congratulate you, man.
You work for a great

672
00:37:35,640 --> 00:37:37,480
organization.
And as the money guy on the

673
00:37:37,480 --> 00:37:39,320
show, eyes look at the backside
of this.

674
00:37:40,080 --> 00:37:41,920
And Jonah is telling the truth
when he said they have an

675
00:37:41,960 --> 00:37:44,560
excellent reigning.
One of the sites that I use is

676
00:37:44,560 --> 00:37:47,680
Charity Navigator.
And Charity Navigator scores

677
00:37:47,680 --> 00:37:51,640
them a very high score for a
great organization to work with.

678
00:37:51,640 --> 00:37:54,560
So do your homework.
But Jonah's organization is

679
00:37:54,560 --> 00:37:57,440
right on point.
So Jonah, thank you so much for

680
00:37:57,440 --> 00:38:00,160
what you're doing for the
organization, and thank you for

681
00:38:00,160 --> 00:38:02,560
having an organization that does
it the right way.

682
00:38:02,560 --> 00:38:04,280
There's a lot of charities out
there that don't.

683
00:38:04,680 --> 00:38:07,640
And Jonah, so I just commend you
and I wish you well.

684
00:38:08,440 --> 00:38:11,200
Thank you, cowboy.
Look, my the book that I wrote,

685
00:38:11,520 --> 00:38:14,440
he walks like a cowboy.
That's that's me right there in

686
00:38:14,440 --> 00:38:17,560
my there it is.
Very, very appropriate.

687
00:38:18,480 --> 00:38:21,000
We will have a link to that in
the show notes as well, and I've

688
00:38:21,000 --> 00:38:22,840
shared it live here on
Clubhouse.

689
00:38:23,120 --> 00:38:25,120
Joe, Now I'm going to ask you
one final question.

690
00:38:25,120 --> 00:38:29,360
This is a question that I don't
think we talk a lot about as

691
00:38:29,680 --> 00:38:32,200
best friends.
You and I have been best

692
00:38:32,200 --> 00:38:34,320
friends, like I said, for a
really long time.

693
00:38:34,320 --> 00:38:38,360
How do you think CMT has played
a role in our friendship,

694
00:38:38,440 --> 00:38:42,240
whether in ways people might
notice or ways they may not?

695
00:38:42,520 --> 00:38:47,680
Well, I would say that it played
a role in our early days, in our

696
00:38:47,680 --> 00:38:51,280
teenage years because I was
really starting to adjust to CMT

697
00:38:51,280 --> 00:38:52,880
and it was really starting to
kick in.

698
00:38:52,880 --> 00:38:57,400
And man, those, those early
friendships, especially as guys

699
00:38:57,520 --> 00:39:02,040
go at that age, to have people
like you in my life who actually

700
00:39:02,040 --> 00:39:05,000
had a true heart and an open
heart to it.

701
00:39:05,240 --> 00:39:07,560
You always just came along for
the ride.

702
00:39:07,560 --> 00:39:11,520
You never once were phased.
You just jumped right in.

703
00:39:11,520 --> 00:39:15,320
And I think that was without
really knowing it in the moment,

704
00:39:15,320 --> 00:39:18,760
in retrospect, that was probably
some of the biggest components

705
00:39:18,760 --> 00:39:21,040
of the foundation of a
friendship that was going to

706
00:39:21,040 --> 00:39:23,720
last a lifetime.
There's just no two ways about

707
00:39:23,720 --> 00:39:26,360
it.
And as we grew older and we

708
00:39:26,360 --> 00:39:30,440
lived together for a chunk of
years in our young adult days,

709
00:39:31,040 --> 00:39:33,200
that's when I got my first pair
of braces.

710
00:39:33,520 --> 00:39:37,480
That's when I was dealing with
some of my biggest frustrations

711
00:39:37,480 --> 00:39:40,360
around adjusting to it and being
comfortable with it.

712
00:39:40,800 --> 00:39:44,640
And man, anytime you saw I was
struggling, you were there.

713
00:39:44,640 --> 00:39:47,880
Anytime you saw that I had
accomplished something, even

714
00:39:47,880 --> 00:39:49,920
emotionally, you were there to
back it up.

715
00:39:50,280 --> 00:39:55,600
And so like life, not just CMT
life, we have always done it

716
00:39:55,680 --> 00:40:00,520
side by side man and CMT having
a brother in arms to go through

717
00:40:00,520 --> 00:40:02,320
it with, especially someone who
didn't.

718
00:40:02,800 --> 00:40:05,920
Understand it intrinsically.
You didn't have it, and you were

719
00:40:05,920 --> 00:40:08,480
still there.
Like you were in it with me, not

720
00:40:08,480 --> 00:40:13,080
just observing it.
And so, yeah, there's not enough

721
00:40:13,080 --> 00:40:16,760
time in the world to talk about
how much that means to someone

722
00:40:16,760 --> 00:40:18,520
who's dealing with a challenge
like this.

723
00:40:19,160 --> 00:40:20,920
Yeah, I can appreciate what
you're saying.

724
00:40:20,920 --> 00:40:23,840
And it's funny because I don't
know that I ever made any

725
00:40:23,840 --> 00:40:28,160
conscious effort like that.
It wasn't a plan that I had

726
00:40:28,160 --> 00:40:30,800
like, OK, I'm going to handle
this this way.

727
00:40:31,080 --> 00:40:34,280
It was just something natural.
And I think it was really maybe

728
00:40:34,280 --> 00:40:39,240
more instinctively, because I
think I probably approached it

729
00:40:39,320 --> 00:40:44,560
how I'd want to be approached if
I were, if I had CMT or had some

730
00:40:44,560 --> 00:40:48,000
kind of disease, this is how I'd
want to be treated.

731
00:40:48,080 --> 00:40:51,600
Thank you, Jonah, for being
here. cmt.org is the place to go

732
00:40:51,600 --> 00:40:55,160
to donate to CMT and actually
make a big difference toward

733
00:40:55,160 --> 00:40:58,600
this very close cure that we
have here.

734
00:40:58,600 --> 00:41:01,480
So please go and support.
And also, if you want to get

735
00:41:01,480 --> 00:41:03,680
Jonah's book, it's called He
Walks Like a Cowboy.

736
00:41:04,240 --> 00:41:07,000
Thanks Jonah, you're so welcome.
Pleasure to meet you guys.

737
00:41:07,040 --> 00:41:10,840
Having a a quick chat during the
craziness of my morning.

738
00:41:10,840 --> 00:41:14,280
It was really nice connecting so
have a great day.

739
00:41:15,560 --> 00:41:20,040
Tell them about candy man.
OK, I will they they've heard it

740
00:41:20,040 --> 00:41:22,000
before.
OK, candy man.

741
00:41:22,000 --> 00:41:25,720
What he's referring to was from
Camp Footprint, the camp that is

742
00:41:25,720 --> 00:41:29,920
designed for children with CMT
to help them just feel like kids

743
00:41:29,920 --> 00:41:33,200
and not worry about what other
people are thinking or doing.

744
00:41:33,400 --> 00:41:36,520
The candy man reference if you
have been following us since

745
00:41:36,520 --> 00:41:41,240
last August, I was designated
the Candy Man, which on the

746
00:41:41,240 --> 00:41:44,400
surface might sound a little
creepy because here I am going

747
00:41:44,400 --> 00:41:47,080
around to camp with little kids
handing out free candy.

748
00:41:48,280 --> 00:41:53,000
But this was approved by the
organization and yeah, basically

749
00:41:53,000 --> 00:41:55,040
everyday.
Just think like the candy man.

750
00:41:55,040 --> 00:41:58,040
I'm sorry, Just think like the
ice cream man or the ice cream

751
00:41:58,040 --> 00:42:01,040
person that comes down your
neighborhood St.

752
00:42:01,040 --> 00:42:03,800
It was the same idea.
I would drive around a golf cart

753
00:42:04,000 --> 00:42:06,840
going to different activities,
stopping, and then the kids

754
00:42:06,840 --> 00:42:09,680
would line up and wait for their
candy.

755
00:42:09,680 --> 00:42:12,600
And it was a great way for me to
get to know the kids in such a

756
00:42:12,600 --> 00:42:16,040
fun way.
So the CMTA is doing lots of

757
00:42:16,040 --> 00:42:20,600
great things and I really
encourage you if any of this

758
00:42:20,600 --> 00:42:25,720
touch to you today to go to
cmtausa.org, that is the website

759
00:42:25,720 --> 00:42:32,240
cmtausa.org and go donate today.
Thanks again to Jonah for being

760
00:42:32,240 --> 00:42:34,640
here.
I want to keep things moving.

761
00:42:36,120 --> 00:42:40,840
Would anybody who would like to
share about their organization

762
00:42:40,840 --> 00:42:44,800
that they'd like some support?
All right, Dr. are you pointing

763
00:42:44,800 --> 00:42:49,480
to you?
You got to go for it, Dr. OK so

764
00:42:49,760 --> 00:42:54,560
last week I shared with you that
my husband and I celebrated 4

765
00:42:54,560 --> 00:42:57,440
years of cancer being cancer
free.

766
00:42:59,000 --> 00:43:05,680
He had colon cancer and you
know, it's so funny when he was

767
00:43:05,680 --> 00:43:09,360
in the hospital during the
surgery and everything, he spent

768
00:43:09,360 --> 00:43:14,240
about 3 days in the hospital and
in between visiting him and

769
00:43:14,240 --> 00:43:19,560
doing my regular job with
podcasting, I, I was kind of

770
00:43:19,560 --> 00:43:22,800
shut out.
He was like, I'm the man, don't

771
00:43:22,800 --> 00:43:25,560
worry about me, everything is
okay.

772
00:43:25,920 --> 00:43:31,320
I thought, I'm, you know, this
is, this is our life.

773
00:43:31,720 --> 00:43:38,200
So what I did was I dove in deep
to all the Facebook pages that

774
00:43:38,200 --> 00:43:42,680
had anything to do with ostomy
and colon cancer and things like

775
00:43:42,680 --> 00:43:47,000
that, and I read up on it.
I did like a crash course in

776
00:43:47,000 --> 00:43:51,960
those three days and it was just
an amazing thing.

777
00:43:51,960 --> 00:43:56,640
I, I learned a lot and stuff
that he didn't even know he was

778
00:43:56,640 --> 00:43:59,160
coming to me for, you know, what
should I do about this?

779
00:43:59,320 --> 00:44:01,480
And I had answers for him
because I had studied.

780
00:44:01,920 --> 00:44:10,040
And so my charity is stand up
for Cancer and and it's perfect

781
00:44:10,040 --> 00:44:14,480
because, you know, Brian and I
are we kind of think of

782
00:44:14,480 --> 00:44:22,480
ourselves as so funny.
So especially on Friday, you

783
00:44:22,480 --> 00:44:27,160
know, Twister twisted Jeopardy.
Anyway, I kind of when I was

784
00:44:27,160 --> 00:44:30,640
living in LA, I kind of dipped
my toe into the cesspool of

785
00:44:30,640 --> 00:44:34,000
comedy writing and things like
that jerked it out real fast.

786
00:44:34,240 --> 00:44:37,560
But that's okay.
But that's why this charity is

787
00:44:37,560 --> 00:44:44,240
so perfect for us, because it's
all about comedy and making

788
00:44:44,240 --> 00:44:49,640
people laugh and it's a feel
good thing and also bringing

789
00:44:49,640 --> 00:44:53,320
awareness.
So that's why I chose Stand Up

790
00:44:53,320 --> 00:44:54,600
for Comedy.
I love that stand.

791
00:44:54,600 --> 00:44:57,080
Up for cancer, sorry.
Stand up for cancer with comedy

792
00:44:57,080 --> 00:45:01,520
with comedy, Yeah.
And they have a lot of big

793
00:45:01,520 --> 00:45:04,080
partners involved in this
program as well.

794
00:45:04,080 --> 00:45:07,360
You can go to
standuptocancer.org to learn

795
00:45:07,360 --> 00:45:10,480
more about that.
And DRI think you had shared

796
00:45:10,480 --> 00:45:13,640
some news with us that your your
husband got a good report

797
00:45:13,640 --> 00:45:15,440
recently, right?
Yeah, last.

798
00:45:15,960 --> 00:45:18,840
That was my win last Friday.
Oh God, Now I'm going to have to

799
00:45:18,840 --> 00:45:23,200
come up with a win for this week
anyway, OK.

800
00:45:24,280 --> 00:45:27,120
It's not supposed to be
something that you sigh about.

801
00:45:28,960 --> 00:45:30,080
OK, go ahead.
OK.

802
00:45:30,360 --> 00:45:35,040
So yeah, four years since the
operation, since all the cancer

803
00:45:35,040 --> 00:45:38,640
was cut out of them.
And so we are celebrating.

804
00:45:39,440 --> 00:45:41,440
That's awesome.
Congratulations to him.

805
00:45:41,440 --> 00:45:43,680
What a great cause.
Stand up to cancer.

806
00:45:44,160 --> 00:45:49,320
So many of us have been affected
by cancer, different types in so

807
00:45:49,320 --> 00:45:52,160
many different ways.
And this is a wonderful way to

808
00:45:52,160 --> 00:45:56,400
support all the different causes
as far as fighting cancer.

809
00:45:56,520 --> 00:45:59,200
Yes, Ralph, go ahead.
So I had a question for Dr.

810
00:45:59,200 --> 00:46:01,960
because Dr. My wife went through
breast cancer froze on me.

811
00:46:01,960 --> 00:46:04,760
And my question for you is on
the sidelines.

812
00:46:04,880 --> 00:46:06,440
Did you struggle the way I
struggled?

813
00:46:06,840 --> 00:46:09,880
Oh man, there were.
You're going to have to censor

814
00:46:09,880 --> 00:46:11,520
me, so get ready.
Stand by there.

815
00:46:11,520 --> 00:46:14,640
Were so many times during when.
After he came.

816
00:46:14,960 --> 00:46:19,160
That I wanted to say F you
buddy.

817
00:46:20,560 --> 00:46:24,280
It's just a natural thing.
He just got on my nerves so

818
00:46:24,280 --> 00:46:27,960
much.
But you were in it together, you

819
00:46:27,960 --> 00:46:30,800
know, that's what that's what we
go through.

820
00:46:30,800 --> 00:46:33,840
And a lot of that stuff he
doesn't even remember.

821
00:46:33,840 --> 00:46:37,720
I mean, he was talking about
stuff because of the medication

822
00:46:37,720 --> 00:46:41,360
that he was given.
He was like I said that I did.

823
00:46:41,400 --> 00:46:42,080
Really.
Yeah.

824
00:46:42,280 --> 00:46:43,640
You did.
Oh, man.

825
00:46:44,560 --> 00:46:45,920
So.
Yeah.

826
00:46:46,760 --> 00:46:48,160
Yeah, I know.
I just, I don't know about you

827
00:46:48,160 --> 00:46:51,960
and I don't want to take a big
leap on this, but I just felt so

828
00:46:51,960 --> 00:46:56,360
powerless, Dr. Because, you
know, I'm a fix it guy and I

829
00:46:56,360 --> 00:46:58,520
just wanted to fix this.
And I remember two weeks after

830
00:46:58,520 --> 00:47:01,560
my wife had a mastectomy, you
know, I was like, I I, I want

831
00:47:01,560 --> 00:47:02,960
you to start getting back to
normal.

832
00:47:03,440 --> 00:47:06,480
And there was no normal.
And I don't know if you felt

833
00:47:06,480 --> 00:47:08,800
that same thing.
I felt so powerless.

834
00:47:08,800 --> 00:47:11,320
I felt so, yeah, lack of
control.

835
00:47:11,480 --> 00:47:15,520
He shut me out, probably.
I don't know if he realized he

836
00:47:15,520 --> 00:47:19,040
was doing that, but you know,
he's like, I'm the man.

837
00:47:19,040 --> 00:47:24,880
I'm can, I can do this.
And and so that's when I kind of

838
00:47:24,880 --> 00:47:28,640
went into OverDrive and started
thinking, you know what, I'm

839
00:47:28,640 --> 00:47:31,480
going to make it so you can't
shut me out.

840
00:47:31,480 --> 00:47:33,400
You're I'm going to be your go
to person.

841
00:47:33,400 --> 00:47:34,840
You're going to be asking me
questions.

842
00:47:35,160 --> 00:47:37,000
And that's exactly what
happened.

843
00:47:37,920 --> 00:47:40,640
Thank you for sharing, Dr. Great
question, Ralph.

844
00:47:40,760 --> 00:47:42,080
Appreciate it.
OK.

845
00:47:42,080 --> 00:47:43,840
I want to keep things going
here.

846
00:47:43,840 --> 00:47:49,800
So who else would like to share
about their organization?

847
00:47:50,680 --> 00:47:54,440
I'm going to go to Tim since Tim
has joined us from the audience.

848
00:47:54,440 --> 00:47:56,760
Tim, good morning.
Welcome back to the stage.

849
00:47:57,240 --> 00:48:00,840
Is there a charity, a nonprofit
that you would like us to

850
00:48:00,840 --> 00:48:03,280
support?
Oh, absolutely, Mark, thank you

851
00:48:03,280 --> 00:48:10,280
so much for doing this.
Well, back in 2021, I was

852
00:48:10,280 --> 00:48:15,040
diagnosed with Ms., and I've
seen a number of organizations

853
00:48:15,560 --> 00:48:20,800
in my time with my diagnosis,
but the one organization that I

854
00:48:20,800 --> 00:48:25,400
really like is the Multiple
Sclerosis Association of

855
00:48:25,400 --> 00:48:29,960
America, MSAA.
They've provided a lot of great

856
00:48:29,960 --> 00:48:32,960
information, a lot of great
support for me and my journey.

857
00:48:33,400 --> 00:48:36,840
And even with Ms. I'm still, you
know, doing podcasting for the

858
00:48:36,840 --> 00:48:39,560
federal government and for
myself and kicking butt and

859
00:48:39,560 --> 00:48:41,840
taking names.
I won't let it keep me down.

860
00:48:41,960 --> 00:48:45,360
I love that that's the Jonah
Berger attitude as well with

861
00:48:45,360 --> 00:48:48,520
what he has to deal with.
And I think that is the best

862
00:48:48,520 --> 00:48:50,800
attitude.
And Tim, I don't know that I

863
00:48:50,800 --> 00:48:52,880
knew that.
And if I did, please forgive me.

864
00:48:52,880 --> 00:48:55,320
I totally forgot.
So thank you for sharing a

865
00:48:55,320 --> 00:48:59,720
little bit about your journey.
What, if I may, what's, what's

866
00:48:59,720 --> 00:49:03,160
the, what would you say right
now is the biggest challenge for

867
00:49:03,160 --> 00:49:08,080
you dealing with Ms. Fatigue is
the biggest challenge right now.

868
00:49:08,960 --> 00:49:13,160
I mean, yeah, I've got twin 11
year olds, so that's even if I

869
00:49:13,160 --> 00:49:14,840
didn't have that mess, I'd be
tired.

870
00:49:16,160 --> 00:49:19,640
But yeah, fatigue, mental fog
hits me.

871
00:49:19,640 --> 00:49:24,760
Sometimes I'm working on podcast
episodes for my clients.

872
00:49:25,680 --> 00:49:27,920
Sometimes I'll be like, you know
what, we're gonna give it an

873
00:49:27,920 --> 00:49:32,640
extra day to work on this.
You know, it's, it's a thing.

874
00:49:32,720 --> 00:49:34,680
It's what I have.
I have it.

875
00:49:34,680 --> 00:49:37,080
It doesn't have me.
Yep, exactly right.

876
00:49:37,080 --> 00:49:39,160
I've said that.
I think that might even be a

877
00:49:39,160 --> 00:49:43,160
quote in one of Jonah's books
that I've actually said that I

878
00:49:43,160 --> 00:49:46,680
CMT yes, he has it, but he it
doesn't have him.

879
00:49:46,680 --> 00:49:50,440
I think that's a wonderful
attitude about it, Tim, and I'm

880
00:49:50,560 --> 00:49:54,000
so glad that you were able to
share and I appreciate that you

881
00:49:54,000 --> 00:49:57,960
did share your journey with us.
And yeah, again, what's the

882
00:49:58,280 --> 00:50:00,240
organization that we should
support?

883
00:50:01,320 --> 00:50:04,000
Sure.
It's the Multiple Sclerosis

884
00:50:04,000 --> 00:50:09,000
Association of America.
It's msaa.org.

885
00:50:09,560 --> 00:50:12,240
Awesome.
We will absolutely support that

886
00:50:12,240 --> 00:50:14,360
because we love supporting you,
Tim.

887
00:50:14,360 --> 00:50:17,800
You've been such a support to
this community and to me

888
00:50:17,800 --> 00:50:20,640
personally, so we will do
whatever we can.

889
00:50:20,640 --> 00:50:22,360
Thank you so much, Tim for
sharing.

890
00:50:22,800 --> 00:50:26,600
Well, first, let me say again,
podcast on dot org, what an

891
00:50:26,600 --> 00:50:30,720
amazing organization that they
have put together here.

892
00:50:30,720 --> 00:50:34,120
The fact that we literally have
thousands of podcasters talking

893
00:50:34,120 --> 00:50:38,520
this week about charitable
causes, nonprofits that we all

894
00:50:38,520 --> 00:50:42,320
want to support it, it's just
mind blowing.

895
00:50:42,440 --> 00:50:45,280
And what a powerful thing that
they've put together.

896
00:50:45,720 --> 00:50:49,560
And yeah, it was only, I think
last year that it became a

897
00:50:49,560 --> 00:50:52,800
worldwide initiative.
I think prior to that it was

898
00:50:53,120 --> 00:50:57,160
mainly being held in Europe.
And they had just recently

899
00:50:57,160 --> 00:50:59,600
extended that to a worldwide
initiative.

900
00:50:59,600 --> 00:51:03,080
And I couldn't be more more
proud to be a part of it.

901
00:51:03,080 --> 00:51:09,120
So kudos to them at podcasts on
with 1 T dot org.

902
00:51:09,360 --> 00:51:11,880
Tomorrow we're back celebrating
our wins.

903
00:51:11,880 --> 00:51:15,640
As Dr. said, how so excited she
is for that.

904
00:51:15,960 --> 00:51:19,880
So what we do is we share our
wins from this past week and

905
00:51:19,880 --> 00:51:22,240
celebrate them together.
And nothing is too big.

906
00:51:22,240 --> 00:51:25,640
Nothing is too small.
It's your win and it deserves to

907
00:51:25,640 --> 00:51:28,160
be celebrated.
So bring that tomorrow.

908
00:51:28,320 --> 00:51:30,480
Of course, we'll be talking some
podcasting as well.

909
00:51:30,480 --> 00:51:33,840
We'll probably dig into the
mailbag a little bit and then

910
00:51:33,840 --> 00:51:36,360
we'll get into our win.
So thank you all for being a

911
00:51:36,360 --> 00:51:38,360
part of this.
Go to Podcasting Morning

912
00:51:38,440 --> 00:51:42,600
chat.com/charity to learn about
the charities you've heard today

913
00:51:42,600 --> 00:51:45,480
and some others that you that
you didn't get to hear today.

914
00:51:45,680 --> 00:51:48,960
Part of the team has shared some
different organizations that

915
00:51:48,960 --> 00:51:52,440
they like to support and you can
learn about that over there.

916
00:51:52,840 --> 00:51:56,320
So until tomorrow, make it a
great day.

917
00:51:56,320 --> 00:51:57,520
Everybody take care.